Holden Updates

  • Sunday 11-22

    Holden’s weekend ended much like it started, with a lot of sleeping.  When he is sleeping, he seems very peaceful and comfortable.  When he is awak...
  • #HoldenStrong Wristband Updates

    We apologize that it has taken so long for the second batch of #HoldenStrong wristbands to ship out.  We were expecting to receive our second order...
  • Friday

    The last couple of days have been a continuation of my previous post.  Holden has slept all but a couple of hours each day, and the hours he has be...
  • Wednesday 11/18

    3:23am Over the last several weeks, our nightly angst has become greater and greater, as we don’t know what to expect the next morning.  Tuesday ni...
  • Tuesday 11-17

    Animal control had stopped by the other day because someone had called about our wandering ducks.  We thought that was the end of it, but apparently we were wrong.  I only wish that our duck-averse neighbor, whomever that anonymous asshole is, would have made an issue when it was a little warmer.
  • Monday 11/16

    12:30am: Holden had another crummy morning and afternoon, sleeping most of the day with Alex holding him in the rocking chair.  As we were changing...
  • Weekend Update

    If I could do it over, I would live everyday as if a miracle was being granted and enjoy every moment with out this fear.  We lived that way some days, especially over the last year, but not all.
  • 11-12-20

    Yesterday Holden continued to sleep until the afternoon.  After sleeping for almost 48 hours, just waking up here and there, he woke and gave us so...
  • 11-10-20

    After a pretty good day yesterday, Holden fell asleep around 6pm last night.  He woke today at 8am to take his anti-seizure medication and vomited ...