Monday 11/16

12:30am:

Holden had another crummy morning and afternoon, sleeping most of the day with Alex holding him in the rocking chair.  As we were changing him and getting ready for bed, he started to rally and wanted to sit at the table.  

This time he sat there for over 30 minutes while I ran to fetch his McDonalds.  As he was waiting he worked on the milkshake that he requested earlier in the afternoon. He stayed awake, playing and joking as he rested in his “cozy spot” on the floor.  We watched Blippi and Shrek and then around 11pm he requested some strawberries.  ✅  Around midnight, he asked for his favorite car shaped pancakes. ✅. Finally about 30 minutes ago, he peacefully fell asleep.  By no means a great day, but it was better than the previous two so it felt good to us. 

I got a little rocking chair time in today as well when I got home from work.  Hallelujah!  

 

17 comments

  • I have lost 2 parents to cancer. It is a ugly, horrible disease, I can’t even imagine how hard it is for your family to be going through this with a child. I pray for Holden all the time as well as the family. I ask God to lift all your spirits and to heal Holden. He is such a strong little boy. Sending love, prayers and hugs to all of you. ❤

    Debi Hager
  • Thank you for sharing Holden with us. Your post reminds me deeply of when we faced this diagnosis with my niece. Reading your words I am made more aware now I am blessed to have witnessed every second I did of her life no matter how painful. In every scenario I would again choose to love her and would again wish I could have just a little more. Thank you. Holden’s story, your story, flooded me with the feeling of the love I had for her.

    Allison
  • Hello sweet boy. I am so glad you got rocking chair time with him. I love that you go out to get him his McDonald’s I think that’s so sweet and that says so much for you both. We love you all. Dalton is sending hugs and said his prayers tonight. We 💕 U So Much🎗️🙏💙

    Megan Gamelin
  • Hello sweet boy. I am so glad you got rocking chair time with him. I love that you go out to get him his McDonald’s I think that’s so sweet and that says so much for you both. We love you all. Dalton is sending hugs and said his prayers tonight. We 💕 U So Much🎗️🙏💙

    Megan Gamelin
  • So thankful I saw Holden’s story on his big visit to Players Club- Holden and the entire Mullen family are a true inspiration-Keep fighting little man!

    Stephen

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