Monday 11/16


Holden had another crummy morning and afternoon, sleeping most of the day with Alex holding him in the rocking chair.  As we were changing him and getting ready for bed, he started to rally and wanted to sit at the table.  

This time he sat there for over 30 minutes while I ran to fetch his McDonalds.  As he was waiting he worked on the milkshake that he requested earlier in the afternoon. He stayed awake, playing and joking as he rested in his “cozy spot” on the floor.  We watched Blippi and Shrek and then around 11pm he requested some strawberries.  ✅  Around midnight, he asked for his favorite car shaped pancakes. ✅. Finally about 30 minutes ago, he peacefully fell asleep.  By no means a great day, but it was better than the previous two so it felt good to us. 

I got a little rocking chair time in today as well when I got home from work.  Hallelujah!  



  • Holden’s soul and spirit is too big to contain. I’m so glad he has reached me. Don’t sweat the small stuff and love always wins. I am a better person for having known you through the generosity of your mom and dad….I’m so glad they shared you with me. We are all with you. Always. Your mom and Dad made sure of that. I wish you more, little man.

  • Oh im so glad that he was able to stay awake for you guys and letting you rock him 💙 thank you for always keeping everyone posted i truly appreciate it💛 lots of love hugs and extra extra prayers 💛💛💛

    Jackie Higgins
  • I am so glad you got some rocking chair time! How special for both you and him. I have come to love Holden as I’ve been following his story and journey for the past 1.5 years. That little guy is truly stronger than so many adults! I am praying for comfort for him right now. I pray that Jesus wraps His arms and grace around your family during these days. There are so many prayer warriors in your family’s corner. 🙏♥️

    Laura Franks
  • I am praying so hard for Holden and for a miracle. I think about him and the both of you constantly during the day. As a parent, my heart breaks for you and it breaks for Holden for having to go through this. I have been shedding a lot of tears for him lately. You are both absolutely amazing parents. I have so much love for your sweet boy, he has a big piece of my heart. I love hearing his voice and his laugh. I’m so happy he had a better night last night.. eating and spending quality time with the both of you. Thank you so much for these updates and for sharing Holden with all of us. He is a true hero with an army of people behind him. I pray that he has better days, more strength and I will never stop praying for a miracle. 💙🙏🏻💙🙏🏻💙🙏🏻

    Jillian Sidoti
  • You are in my prayers everyday and night. Give Alex a enormous hug from me please….kisses to HOlden


Leave a comment